The problem
To be brief the problem with the clinical trial system from the perspective of someone seeking alternative or adjust therapy is that is not part of the nation's health care system but part of the pharma industry pipeline. This problem is so severe that while there maybe two million people looking for clinical trial information using Internet search alone easily 100,000+ Americans will die prematurity while there was a trial looking for them within a few zip-codes that could have saved or at least extended their lives.
Who there are http://clinicaltrialselect.org/
Clinical Trial Select is a small 501c3 nonprofit group that has been working on this problem for over 8 years. The project was launched with the nonprofit equivalent of seed funding from the American Cancer Society this has been an entirely all volunteer effort.
To be brief the problem with the clinical trial system from the perspective of someone seeking alternative or adjust therapy is that is not part of the nation's health care system but part of the pharma industry pipeline. This problem is so severe that while there maybe two million people looking for clinical trial information using Internet search alone easily 100,000+ Americans will die prematurity while there was a trial looking for them within a few zip-codes that could have saved or at least extended their lives.
Who there are http://clinicaltrialselect.org/
Clinical Trial Select is a small 501c3 nonprofit group that has been working on this problem for over 8 years. The project was launched with the nonprofit equivalent of seed funding from the American Cancer Society this has been an entirely all volunteer effort.
In addition to my friend Etienne, the CEO http://about.me/etienne/bio the core group includes a renown data architect, who designed the original HL7 electronic medical record document architecture and was the data architect at Lexus|Nexus for over 20 years. We also lucky enough to have one of the top Perl developers anywhere, and a equally well known bio-statistician.
While the life you help save may not be your own simply helping people speak to their own doctors about their clinical trial options will change the practice of health care in America.
No comments:
Post a Comment